加拿大好友霍偉成~~~ 祝願你早些康復..

socheung

為保障霍家的私隱，我將最近在 AANA 的原文改貼在社員通訊內。若你想知近況而又不能進該頁，請來電話。

[ 本帖最後由 socheung 於 2011-5-28 13:44 編輯 ]

socheung

Here below is the disease which Fok suffered (posted by Yu HT on AANA):

Here is some information about the
Neuromyelitis Optica, more details can be found from the Links  National Institute of Neurological Disorders and Stroke. National Institutes of Health.
Neuromyelitis Optica is an uncommon disease syndrome of the central nervous system that affects the optic nerves and spinal cord. Individual wit  NMO develop optic neuritis, which causes pain in the eye an vision loss, and transverse myelitis, which causes weakness, numbness, and sometimes paralysis of the arms and legs, along with sensory disturbances and loss of bladder an bowel control . NMO leads to loss of myelin, which is a fatty substance that surrounds nerve fiber and leave areas of broken-down tissue. In the disease process of NMO. for reasons that aren"t yet clear, immune system cells and antobodies attack and destroy myelin cells in the optic nerves and spinal cord.

鄧姑

Dear AA Friends,

Edith has some encouraging news to share with us.

After his first chemo treatment 化療, Edith reported that Fred is able to 見到影子了. He will continue to receive chemo once a month, with the expectation if the progression continues, he may be able to see colour 顏色 in the near future. Let's continue to pray for Fred.

The doctor sent Fred into the isolation room because his immune system has been unstable, sometimes low, sometimes higher. This measure is to protect him from getting other infection.

Lam Tung-Shing and Yuen Lai-Wan have related to Edith that their daughter, a third year medical student at the University of North Carolina, happened to have a patient with NMO, the same type of rare decease that Fred has contracted. This patient became paralyzed waist down within three days after feeling ill. Now this patient is getting rehab to regain her lower body mobility. This again sounds very positive.

The expert doctor/professor on NMO, Dr. Traboulsee has called Edith at home to follow up on Fred's condition. He has now been put in touch with Fred's doctor in Langley hospital. Dr. Traboulsee will have medical information about Fred first hand and will be able to see Fred and be part of team to treat him. I have found a link for this doctor,
http://www.neura.net/channels/1.asp?id=49

This is the end of the report, as told to me by Edith.

Now, I would like to draw your attention to an article posted by Rex Yau on April 23, 2011 on AKINNA Yahoo group message board,  ----  subject is Biology of Hope. Rex once asked me to comment on it as we had a conversation about suffering when we met in Vancouver a few years ago. I said to myself that when someone suffers, he needs to have hope, but this hope must be supported by his faith and action. Then in turn his faith deepens and his hope becomes more reachable. The cycle continues on.

When I re-read it now, this article has even more meaning. It is real among us; it hits home. I extracted a few sentences below for Edith, with which she can use to encourage Fred.

"When you are hanging on by your fingernails and someone says, `I believe you can do this,' it actually gives you a physical lift. Despair physically deflates us. But hope can raise your serotonin levels."

When we are suffering or fearful, our hopes may often be dim, but they must include reasonable expectation.

Hope often requires enormous effort and shapes real lives.

Fred, we believe you can do this.





--
OM FALA MAME LALE SOHA
cylee.toronto@gmail.com
Cecilia Lee

鄧姑

Good News

Dear  Friends,

This week, we continue to have encouraging news about Fred on his progress.

In her own words, Edith said "Fred is getting better, at least he re-gained his confidence, he can sit up more often, hopefully some more will come back. His spirit is improving."

This sums it up for all of us.

Unlike in the previous update when Fred was having breathing problem after sitting up for a few minutes, he is gradually improving the duration. It started off with several minutes and over the last week, has extended to 4 hours. This alone has significant importance in Fred's well being, like more regular bowel movement and reduction in puffiness 腫.

His vision also appears to have improved. He has been seen turning his head in accordance with people's movement. He can respond correctly to some preliminary vision test, like how many fingers do you see. He can distinguish correctly the colour of the gown worn (required in isolation room) by Edith, as being light colour, in fact yellow  with stripes.

Everyday, the physiotherapist 物理治療師 would come to help mobilize 活動 the hip joints for Fred. This and support media for his feet etc are to improve/maintain the strength and elasticity of his muscles. The use of tight socks also provides the necessary support to his legs to maintain healthy blood pressure.

Edith is particularly delighted to see the change in Fred's attitude. Even without the service from the Psychologist at this time, Fred has the necessary determination to work with medical staff on his physical challenges. He is working cooperatively with Edith in making decisions on this road to recovery. They have the mutual understanding that as long as they do not give up, they can expect progress will continue to come. They treasure every moment seeing all the little progressing steps towards full recovery.

In my conversation with Edith this week, Edith is more upbeat in her voice, although she has been very strong all along. She is very pleased with all the care received by Fred in the hospital. She is very grateful to the Canadian Health Care System in providing the best service without the financial burden to them during this challenging time.

Let me quote for you, Edith and Fred,

When you are grateful, fear disappears and abundance appears
- Anthony Robbins
--
OM FALA MAME LALE SOHA
cylee.toronto@gmail.com
Cecilia Lee

鄧姑

Good News from 虞紅娣

Scan_Doc0002.pdf (510.65 KB, 下載次數: 1351)

2011-6-22 19:22 上傳

點擊文件名下載附件

socheung

Here below is posted on ANAA by Toalyau on 19 July:

Today, Fred had 3 visitors, Toalyau, Cynthia and Cecilia. He had a lot of improvement since we saw him last time about a month ago. He can now sit up for a long time. Staying in bed for too long is not a good idea. We were told he can expand his lungs by sitting up longer. He can see if you are standing or sitting down, if you are wearing a belt in front of you and he can scoop food from a bowl without much aid. However, he does not have much appetide and has lost a lot of weight. He is working to increase his weight and having physiotherapy every day to increase his strength. With Edith's loving care, there is no doubt that Fred will be on a solid recovery path.


[ 本帖最後由 socheung 於 2011-6-23 12:16 編輯 ]

socheung

Here below is posted by Cecilia Leung on AANA today :--

Dear AA Friends,  

Thanks Bing Kee for asking, I have some update to share. Others who know can add in

I have returned from Vancouver for over a week now. During my stay in Vancouver, I have seen Fred in 3 separate occasions. He still stayed in the isolation room in Langley hospital then (June 16 - June 25). He has good days and bad days. The good time was mostly when friends came to visit and support him. He also enjoyed good food brought for him by friends and Edith as he does not like hospital food. There have also been bad days when he felt so down that he would stay in bed, even when he was supposed to be sitting up.

I witnessed he has a lot of difficulty doing his physiotherapy exercises even with the most basic movements like reaching for his toes while sitting. However, compared to his initial sessions, when he could hardly sit up, the physiotherapist credited him for making excellent progress. We encouraged him to set near term, reachable goals so that he could celebrate every time he is there. That day, we celebrated and clapped. Fred clapped too!

As of July 4th, the hospital is planning to discharge him. As Fred is waiting for the Rehab Centre, for the moment, he will be moved to a regular ward. He might have moved by now.

He also has a 3rd chemo scheduled on July 15th. While Fred was not satisfied with the progress since his 2nd chemo, Edith has a different opinion. She believed Fred has made tiny improvement on seeing and leg movement, as long as he is focussed. So before Fred will be given a different medical treatment which is available to him if chemo is stopped, he will go ahead with the July 15th chemo. The chemo did not appear to have a terrible effect on Fred so far.

When the Rehab Centre is available for Fred, he will move to Vancouver which is where this Rehab Centre is located. This Centre is famous for having an excellent physiotherapy facility.

In the mean time, Edith is on medication for her liver condition. She went for her ultra sound examine a couple of days ago.

鄧姑

hi,

fred is getting better, he is recovering most of his vision, move his upper body,he will be transferred to a Rehabilitation Center, most probably in Abbotsford. he is a bite upset as he is expecting to be in GF Strong instead which is the most well known one in Vancouver.

God bless him.

Edith  

socheung

下面是最新放在 AANA 阿霍的消息 :  (18-07-2011 上午)
Hi all:  A few days ago I  talked to Edith about Fred's condition.   She said that there has been some progress.   He can "see" a shadow and whether she wore a hat or not, but still no colour or sense of brightness.    He couldn't tell the light is on or not.  There has been a small movement in the foot but he was not aware of it.  The 3rd chemo therapy was schedule on Jul 15, 11.   Hopefully it would more improvement.

He is not ready to move to a Reh. Centre yet.   

Elsie

[ 本帖最後由 socheung 於 2011-7-18 22:57 編輯 ]

鄧姑

鄧姑

[ 本帖最後由 鄧姑 於 2011-9-11 15:23 編輯 ]

socheung

Here below is just posted by Rex Yau on the ANAA :

We had a group of five people visiting Fred today in Langley at the hospital. It had been a very challenging year for the Fok family with its highs and lows. However, I am happy today to report to you that Fred has improved a lot since we saw him last time. He is one step forward to become more independent. He has stepped up on exercise, especially to the upper body and has been lovingly cared for by Edith. On leaving, I have the feeling that Fred is going to improve more by the time of our next visit.

stl

好！
努力、加油！！
我們繼續為阿Fred祝福！！！

socheung

The photo was taken by Toalyau at Fred's home a few days ago when the ANAA welcomed Leung YC in Vancouver.