加拿大好友霍偉成~~~ 祝願你早些康復..

socheung

原帖由 鄧姑 於 2011-5-12 10:41 發表
Message from Toalyau today's email:-

Fred was seated in a wheelchair for a period of time today. He is encouraged to be as active as he can manage. There is no improvement with his vision or his pa ...

這是梁綺娟貼在AANA上的新訊息：
As of May 16, Fred's condition with his eyes and legs remain unchanged. He is still in Vancouver General Hospital. The doctors have not been able to find any sign of virus in his body at this time. This has included using culture from sputum from his cough and biopsy from his lungs. Regardless, the hospital has treated this as a very important case and has assigned 2 teams to diagnose and investigate. One team is from chest/lung department and the other from neuro-science since his nervous system has been affected, resulting in vision and leg mobility issues. In addition, organs in his lower body continued to be affected.
Fred has further experienced bleeding from his lower body. As such, he is feeling relatively weak
A third team for Internal Medicine has been added for now to look after the bleeding issue.

請為我們的好友祈禱。

socheung

原帖由 socheung 於 2011-5-18 00:52 發表


這是梁綺娟貼在AANA上的新訊息：
As of May 16, Fred's condition with his eyes and legs remain unchanged. He is still in Vancouver General Hospital. The doctors have not been able to find any sign o ...

Here below is extracted from the information by Cecilia Leung on AANA on May 20 :-
There has been no change for Fred as this time, no noticeable improvement for his eyes and legs, but no additional symptoms either. For Fred, there have been up and down moments during this trying period.
He has completed the 5 treatment sessions for plasma exchange. The family is following up with the doctors to find out what other treatment is being planned.
As per Edith, blood was taken out of and returned to Fred after the excess white blood cells ware removed. This is because the doctors believe Fred's immune system was generating antibodies to fight his own organs.
Edith would like to thank everyone of you again for your concerns and blessings. I have passed on regards to her, that have come my way.

socheung

為保障霍家的私隱，我將最近在 AANA 的原文改貼在社員通訊內。若你想知近況而又不能進該頁，請來電話。

[ 本帖最後由 socheung 於 2011-5-28 13:44 編輯 ]

socheung

Here below is the disease which Fok suffered (posted by Yu HT on AANA):

Here is some information about the
Neuromyelitis Optica, more details can be found from the Links  National Institute of Neurological Disorders and Stroke. National Institutes of Health.
Neuromyelitis Optica is an uncommon disease syndrome of the central nervous system that affects the optic nerves and spinal cord. Individual wit  NMO develop optic neuritis, which causes pain in the eye an vision loss, and transverse myelitis, which causes weakness, numbness, and sometimes paralysis of the arms and legs, along with sensory disturbances and loss of bladder an bowel control . NMO leads to loss of myelin, which is a fatty substance that surrounds nerve fiber and leave areas of broken-down tissue. In the disease process of NMO. for reasons that aren"t yet clear, immune system cells and antobodies attack and destroy myelin cells in the optic nerves and spinal cord.

socheung

Here below is posted on ANAA by Toalyau on 19 July:

Today, Fred had 3 visitors, Toalyau, Cynthia and Cecilia. He had a lot of improvement since we saw him last time about a month ago. He can now sit up for a long time. Staying in bed for too long is not a good idea. We were told he can expand his lungs by sitting up longer. He can see if you are standing or sitting down, if you are wearing a belt in front of you and he can scoop food from a bowl without much aid. However, he does not have much appetide and has lost a lot of weight. He is working to increase his weight and having physiotherapy every day to increase his strength. With Edith's loving care, there is no doubt that Fred will be on a solid recovery path.


[ 本帖最後由 socheung 於 2011-6-23 12:16 編輯 ]

socheung

Here below is posted by Cecilia Leung on AANA today :--

Dear AA Friends,  

Thanks Bing Kee for asking, I have some update to share. Others who know can add in

I have returned from Vancouver for over a week now. During my stay in Vancouver, I have seen Fred in 3 separate occasions. He still stayed in the isolation room in Langley hospital then (June 16 - June 25). He has good days and bad days. The good time was mostly when friends came to visit and support him. He also enjoyed good food brought for him by friends and Edith as he does not like hospital food. There have also been bad days when he felt so down that he would stay in bed, even when he was supposed to be sitting up.

I witnessed he has a lot of difficulty doing his physiotherapy exercises even with the most basic movements like reaching for his toes while sitting. However, compared to his initial sessions, when he could hardly sit up, the physiotherapist credited him for making excellent progress. We encouraged him to set near term, reachable goals so that he could celebrate every time he is there. That day, we celebrated and clapped. Fred clapped too!

As of July 4th, the hospital is planning to discharge him. As Fred is waiting for the Rehab Centre, for the moment, he will be moved to a regular ward. He might have moved by now.

He also has a 3rd chemo scheduled on July 15th. While Fred was not satisfied with the progress since his 2nd chemo, Edith has a different opinion. She believed Fred has made tiny improvement on seeing and leg movement, as long as he is focussed. So before Fred will be given a different medical treatment which is available to him if chemo is stopped, he will go ahead with the July 15th chemo. The chemo did not appear to have a terrible effect on Fred so far.

When the Rehab Centre is available for Fred, he will move to Vancouver which is where this Rehab Centre is located. This Centre is famous for having an excellent physiotherapy facility.

In the mean time, Edith is on medication for her liver condition. She went for her ultra sound examine a couple of days ago.

socheung

下面是最新放在 AANA 阿霍的消息 :  (18-07-2011 上午)
Hi all:  A few days ago I  talked to Edith about Fred's condition.   She said that there has been some progress.   He can "see" a shadow and whether she wore a hat or not, but still no colour or sense of brightness.    He couldn't tell the light is on or not.  There has been a small movement in the foot but he was not aware of it.  The 3rd chemo therapy was schedule on Jul 15, 11.   Hopefully it would more improvement.

He is not ready to move to a Reh. Centre yet.   

Elsie

[ 本帖最後由 socheung 於 2011-7-18 22:57 編輯 ]

socheung

Here below is just posted by Rex Yau on the ANAA :

We had a group of five people visiting Fred today in Langley at the hospital. It had been a very challenging year for the Fok family with its highs and lows. However, I am happy today to report to you that Fred has improved a lot since we saw him last time. He is one step forward to become more independent. He has stepped up on exercise, especially to the upper body and has been lovingly cared for by Edith. On leaving, I have the feeling that Fred is going to improve more by the time of our next visit.

socheung

The photo was taken by Toalyau at Fred's home a few days ago when the ANAA welcomed Leung YC in Vancouver.